Analytical Observation: Relationship between the Disability Degree and Life Quality in Leprosy Patient in Lhokseumawe City

Putri Alvina Sofia Adila Nafsih; Rizka Sofia; Mohamad Mimbar Topik

doi:10.55606/ijhs.v6i1.6889

Authors

Putri Alvina Sofia Adila Nafsih Universitas Malikussaleh
Rizka Sofia Universitas Malikussaleh
Mohamad Mimbar Topik Universitas Malikussaleh

DOI:

https://doi.org/10.55606/ijhs.v6i1.6889

Keywords:

Dermatovenereology, Disability Degree, Leprosy, Life Quality, Public Health

Abstract

Leprosy can make patients experience loss of sensation in the body and if not treated properly it can cause irreversible disability and reduce the quality of life of patients. The purpose of this study was to analyse the relationship between the level of disability and the quality of life of leprosy patients in Lhokseumawe city. This is an analytical observational designed with cross-sectional study. The sampling technique was total sampling. Data analysis was carried out with the Spearman correlation test. Based on the results of the analysis test, it was found that the p-value ranged from 0.000-0.004 and the r-value ranged from (-0.499)-(-0.765). There is a significant relationship between the level of disability and the quality of life of leprosy patients in each domain item assessed with a significant strength of relationship and negative correlation direction indicating that the higher the level of disability of the patient, the lower the quality of life.

Downloads

Download data is not yet available.

References

Anastasia Porong, L. M., Sahli, I. T., & Asrianto. (2020). Karakteristik penderita kusta di Puskesmas Abepantai Kota Jayapura tahun 2020. Gema Kesehatan, 12(1), 1–6. https://doi.org/10.47539/gk.v12i1.126

Brouwers, C., van Brakel, W. H., Cornielje, H., Pokhrel, P., Dhakal, K. P., & Banstola, N. (2011). Quality of life, perceived stigma, activity and participation of people with leprosy-related disabilities in South-East Nepal. Asia Pacific Disability and Rehabilitation Journal, 22(1), 16–34. https://doi.org/10.5463/dcid.v22i1.15

Catrina, P., Warjiman, & Rusmegawati. (2017). Faktor-faktor yang berhubungan dengan tingkat kecacatan klien kusta. Jurnal Keperawatan Suaka Insan, 1(1), 68–80. https://doi.org/10.20527/dk.v5i1.3634

Centers for Disease Control and Prevention. (2020). Disability and health overview.

Chalmers, R., Barker, J., Griffiths, C., Bleiker, T., & Creamer, D. (2010). Rook’s textbook of dermatology (9th ed., Vol. 1). Blackwell Publishing.

Chowdhury, S., & Chakraborty, P. P. (2017). Grade 2 disability among leprosy patients: A pilot study from an endemic area of central India. Journal of Family Medicine and Primary Care, 6(2), 169–170.

Endarti, A. T. (2015). Kualitas hidup kesehatan: Konsep, model, dan penggunaan. Jurnal Ilmiah Kesehatan, 7(2), 97–108.

Fahik, A., Wahjoedi, I., & Supardi, F. (2014). Prevalensi kusta pausibasiler dan multibasiler berdasarkan karakteristik kepadatan hunian, riwayat kontak, sosial ekonomi di Kabupaten Belu Provinsi Nusa Tenggara Timur. Jurnal Kesehatan Masyarakat, 7(1), 155–160.

Fikria, I. (2015). Karakteristik pasien kusta di RSUD Tangerang tahun 2011.

Geetha, K., Dhanalakshmi, A., & Judie, A. (2015). A study to assess the impact of leprosy on quality of life among leprosy patients in government rehabilitation home at Paranur. International Journal of Pharmaceutical and Clinical Research, 7(6), 466–468.

Govindharaj, P., Srinivasan, S., & Darlong, J. (2018). Quality of life of people affected with leprosy disability living in Purulia, West Bengal. International Journal of Health Sciences and Research, 8(2), 221–225.

Henry, M., Galan, N., Teasdale, K., Prado, R., Amar, H., Rays, M. S., Roberts, L., Siqueira, P., de Wildt, G., Virmond, M., & Das, P. K. (2016). Factors contributing to the delay in diagnosis and continued transmission of leprosy in Brazil: An explorative, quantitative, questionnaire-based study. PLoS Neglected Tropical Diseases, 10(3), 1–12. https://doi.org/10.1371/journal.pntd.0004542

Jufrizal, & Nurhasanah. (2019). Stigma masyarakat pada penderita kusta. Idea Nursing Journal, 10(1), 27–31.

Kang, S., Amagai, M., Bruckner, A. L., Enk, A. H., Margolis, D. J., McMichael, A. J., & Orringer, J. S. (2019). Fitzpatrick’s dermatology (9th ed., Vol. 1). McGraw-Hill Education.

Kementerian Kesehatan Republik Indonesia. (2019). Peraturan Menteri Kesehatan Republik Indonesia Nomor 11 Tahun 2019 tentang penanggulangan kusta.

Kesuma, M. B. H. (2015). Faktor-faktor yang berhubungan dengan kejadian kusta terhadap pasien kusta di RS Dr. Rivai Abdullah Sungaikundur.

Maulina, N., Zakiyya, N., & Mellaratna, W. P. (2023). Associated factors with disability levels in leprosy patients at health center working area Lhokseumawe City 2016–2020. 6, 100–108. https://doi.org/10.31850/makes.v6i1.1956

Meiningtyas, D. E., & Hargono, A. (2018). Hubungan faktor demografi dan dukungan sosial dengan kualitas hidup pasien kusta multibasiler pasca multi drug therapy. The Indonesian Journal of Public Health, 13(2), 258–268. https://doi.org/10.20473/ijph.v13i2.2018.258-268

Menaldi, S. L. S. W. (2018). Kualitas hidup pasien kusta di poliklinik kulit dan kelamin RS Dr. Cipto Mangunkusumo Jakarta: Kajian terhadap stigma sosial. Electronic Journal Kedokteran Indonesia, 6(3), 159–165. https://doi.org/10.23886/ejki.6.10107

Noordende, A. T. van, van Brakel, W. H., Banstola, N., & Dhakal, K. P. (2016). The impact of leprosy on marital relationships and sexual health among married women in Eastern Nepal. Journal of Tropical Medicine, 2016, 1–9. https://doi.org/10.1155/2016/4230235

Purwanto, H. (2013). Cara penemuan penderita kusta baru dan tingkat kecacatan di Provinsi Lampung. Jurnal Kesehatan Lingkungan, 4(2), 371–380.

Putra, Y., Mudatsir, & Tahlil, T. (2017). Pengalaman keluarga dalam memberikan dukungan keluarga pada penderita kusta. Jurnal Ilmu Keperawatan, 5(2), 28–41.

Refitlianti, A., & Isfandiari, M. A. (2018). Hubungan dukungan keluarga terhadap kualitas hidup penderita kusta kecacatan tingkat 2. Jurnal Ilmiah Kesehatan Media Husada, 6(2), 159–174. https://doi.org/10.33475/jikmh.v6i2.35

Resmiya, L., & Misbach, I. H. (2019). Pengembangan alat ukur kualitas hidup Indonesia. Jurnal Psikologi Insight, 17(1), 20–31. https://doi.org/10.21009/plpb.171.04

Rinawati, F., & Alimansur, M. (2017). Meningkatkan harga diri pasien kusta dengan terapi kelompok. Jurnal Ilmu Kesehatan, 4(2), 59–63. https://doi.org/10.32831/jik.v4i2.91

Salju, E. V., & Muntasir, L. P. R. (2018). Studi faktor-faktor yang berhubungan dengan kejadian penyakit kusta pada wilayah kerja Puskesmas Bakunase Kota Kupang tahun 2017. Jurnal Info Kesehatan, 16(2), 197–213. https://doi.org/10.31965/infokes.Vol16.Iss2.223

Savassi, L. C. M., Bogutchi, T. R. S., Lima, A. C. L., & Modena, C. M. (2014). Quality of life of leprosy sequelae patients living in a former leprosarium under home care: Univariate analysis. Quality of Life Research, 23(4). https://doi.org/10.1007/s11136-013-0590-7

Slamet, E. S., Sukandar, H., & Gondodiputro, S. (2015). Faktor-faktor yang mempengaruhi quality of life orang yang pernah mengalami kusta di Kabupaten Cirebon.

Utama, A. P. W. (2018). Hubungan tingkat kejadian kecacatan dengan kualitas hidup (quality of life) pada penderita kusta yang RFT (release from treatment) di Babat Jerawat Benowo Surabaya.

World Health Organization. (2022). WHOQOL: Measuring quality of life.

Yuliati, A., Baroya, N., & Ririanty, M. (2017). Perbedaan kualitas hidup lansia yang tinggal di komunitas dengan di pelayanan sosial lanjut usia. Jurnal Pustaka Kesehatan, 2(1), 87–94.

Zou, Q., Luo, Y., Hao, D., Li, M., & Jihui, C. (2024). Validation and application of the dermatology life quality index score, a modification of the DLQI score, in psoriasis patients. 3, 1–8. https://doi.org/10.1186/s41043-024-00587-3